It is desirable Hannard Alex can play in the yard with you but it is not possible because a blade of grass can also kill him.
Hannard Alex, the boy in Hill Head, Hampshire, England, disordered immune deficiency chronic granulomatous disease (GCD), which makes white blood cells can not fight bacteria and infection.
9-year-old boy is one of 300 cases of genetic disorders in Britain. Alex rarely leave the house for a blade of grass or a speck of dust can kill you.
Hannard Alex, 9 years old, is not out to play because of chronic granulomatous disease (GCD) |
Alex's mother, Ms. Louise, 40, had to quit school to care for him. She said: "It's hard for Alex to go out and do things that children in that age want."
Alex can not go near the pond because there are a lot of bacteria and he may be infected. "Where is the playground the most dangerous because there are many bacteria and of course the boy is not allowed to play there," she said Louise.
Alex's white blood can not fight infections, so, if infected, the boy will die.
"It's hard to keep him always in the house because it is like to be playing like normal children. We have tried to play with him as much as possible."
Mother Louise and father David, Alex can fight with the disease of wickedness. |
The doctors at John Radcliffe Hospital, Oxford, Oxon Alex was discovered from a chronic granulomatous in 2007, at 5 years old children. Initially, doctors were unable to find Alex's illness when they are hospitalized. Alex's parents then had to prepare psychologically for the worst.
"I worked a lot, Alex usually with a babysitter for the first time the boy is sick. Only four days later, Alex had to special treatment. We were told that the boy could death. It was a terrible time and harsh for us. No one knows what the boy disease ".
"Fortunately, there's a doctor to remember a previous case with chronic granulomatous and Alex treated this way. It's amazing that three days later, the boy has been up and walking around."
Alex wishes to become a genetic scientist to be able to help others like her are sick.
Currently, only transplanted leukemia stem cells, you could have a normal life.
The boy wants to become a genetic scientist to help others |
He said: "I would like to join clubs and go camping, but if it does get wet, I is not going anywhere because these days often have more bacteria. I love watching movies and playing video games. I have good friends who always take care and keep me safe, but I want to be able to do things other children do. "
Anthony Nolan, who helped Alex find a donor stem cell leukemia, said: "Alex under so many restrictions in life, a simple infection can be life threatening him. The only hope is boy transplanted stem cells. We need more blood donors, especially the boys, to improve the likelihood of success ".
Rosemarie Rymer, people with chronic granulomatous Assembly, said: "It's important for families affected by chronic granulomatous have a normal life as possible. It's really very difficult. We I will help and support them in their best ".
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